Over the last year or so I have started to watch more and more YouTube videos which has led me to following a few ‘Vloggers’. This started when I discovered someone who had been posting videos every day for the last few years (he is now into the 9th year), including the documentation of him discovering a brain Tumour and the following treatment. This included a video during his brain surgery.
It is mad to think of what people are able to share with the world.
A little while ago I came across a video to do with a very lovely couple and the life they live while fighting Cystic Fibrosis, or CF as it is commonly known. It has been eye opening, heart warming and inspirational to see this lovely lady fight and struggle with this condition whilst retaining a thankful and positive demeanour.
Mary has always had CF and has over her life learnt all that is needed to help maintain her condition to make the most of what she can do. I think it can be difficult when watching the videos to really imagine what it is like to live with such a condition and there are only ever small hints to how much suffering it causes. You see the occasional coughing fit and the impact certain medications have on her system and the way she feels but through it all she is positive and continues to fight.
One phrase which has become a little catch phrase for her is ‘Do what you think you can’t do’ and I think it is astonishing and moving to see her fight and push through the pain and discomfort. She is grateful for the time she doesn’t have a head ache or has managed to keep a meal down having just suffered a coughing fit. Something most people would really struggle to live with on a day to day basis. She has been pushing herself so that she can now maintain a headstand and even walk on her hands. I haven’t been able to do stuff like that since I was like 8!!
We complain and winge about the smallest of things in life, it seems to be the thing our generation does, with the internet providing us with a platform to anonymously and openly complain about every tiny detail in life. And I am guilty of this just like everyone else. I complain my hip hurts or that I have to cook diner for my very loving husband. My daily battles are not so draining and exhausting as Mary who has this exhausting and hard battle to live through.
Her husband Peter is a Pastor so it is lovely to also see people openly talking about religion, it is not bible bashing, in your face or any kind of over kill. It is just very present within the way they act and live their lives. They are passionate about it and it gives them such peace when dealing with difficulties. It is a nice change from the doom and gloom. For someone who has every opportunity to play the victim (and rightly so) they live their lives striving to help and encourage others, to push through and not let things get them down. To see the positives and happiness is every moment and make the most of the times when things are a little easier.
An inspiring couple who live their lives to the fullest and really do have a great sense of peace and purpose. I wish them all the best in their fight against CF especially as we head toward CF awareness month and a lot of charity walks being carried out to raise money towards research on the condition.
Though they are not likely to read this and I am not likely to meet them, they have inspired me the last few months to push myself and to prove myself wrong and to do what I think I can’t do. And for that I am truly grateful!
Here are a few links to all their social media bits;